dating with chronic illness
PERSPECTIVENo, chronic disease does not make you a couple's burden I felt that I had damaged the relationship by getting sick, although I couldn't help it. More than once, I've seen that he suggested it's easier not to date a person with a chronic illness, because that person will end up being a burden to you. Like someone with a chronic illness, I understand. Giving someone without a chronic disease can be easier — it means you get to stay ignorant of certain diseases, you don't have to be an emotional support when you need it, and you don't have to see the person you love being uncomfortable. But I take a serious problem with the suggestion that people with chronic diseases are burdens. I have intestinal inflammatory disease (IBD), and I have been in two relationships since I was diagnosed with ulcerative colitis. During the first relationship, I felt like a burden. I had no idea he was suffering from the disease during the first year we were together. It wasn't until later, when I had to have emergency surgery, we understood how sick he was really. I felt that I had damaged the relationship by getting sick, although I couldn't help it. And even though he didn't leave me until 6 years later, he wasn't very supportive at all. I spent those years feeling bad for every appointment at the hospital that I asked him to come to, to which he refused. I constantly felt that I was disappointed when I had to cancel the plans because I didn't feel well. I felt I had failed as a bride when the steroids I took made me gain a lot of weight. I stopped asking for something, or even talking about my chronic illness with him, because I didn't want to be a burden on him. But I just felt like a burden because of his foolish reaction to my struggles. When you are diagnosed with something that changes your life, you wait for the person you are with to support you. You expect them to be there to love and care for you when you need it. You expect them to be your best friend. You expect them to be there for you emotionally, because having a chronic disease can be very harmful to your mental health. But all these things are very normal things to expect in a relationship—it is not exclusive to date someone who is chronically ill. I understand that people are afraid to date someone with health problems, but that's because there's a misunderstanding around them. I think people assume they need to become caregivers, but we don't need caregivers. We only need normal relationships, where love and care are available. Many of those with chronic illness — including me — have become incredibly independent because we have to be. We're used to people disappointing us. And we're used to feeling like we're the ones who let people down, so we manage to take care of ourselves, and minimize the pain we have because we're so scared of being a burden. I stopped feeling that I was hurting my relationship by being chronically ill when my first partner and I split up. I went through all the usual emotions: blaming myself, asking myself how I could have stopped the inevitable breakup, and how I could have fixed the relationship. I spent centuries thinking if I wasn't chronically sick, maybe it wouldn't have happened. And maybe I wouldn't have. But I realized that if someone couldn't be with me because I have a chronic illness, it wasn't a relationship I needed. But even though I realized this, I was still afraid to go out again. When I met my current partner, and my baby's father, I remember waiting a couple of weeks to tell him about my state of health. That's another thing. You feel like you have to reveal it early because you feel compelled to give them the option to leave before you started dating. You're getting ready for rejection, so you don't have to reveal yourself by getting sick later, and risk going through the tear of a break later on in the line. I wish it wasn't, but for most of us, it is. My partner was incredibly supportive as soon as I told him. It wasn't a problem for him at all. He didn't even make a big deal. It was something I lived with, that I couldn't change. For him, it was only part of the package he was interested in. We've been together for 18 months, and not once has made me feel like a burden. He's been there through every hospital appointment, every hospital stay, and he takes care of me and our baby when I don't feel well. He accepts me as I am and never makes me feel like I disappoint him or if I'd be better off without me. I wish I had left my last relationship before, because now I know what it's like to be with someone who doesn't make me feel like there's a "catch" to go out with me. And I wish that other people with chronic diseases also experience that feeling. The right person, you're not a burden. You're someone who loves and wants to take care of when times are bad. And you need to take care of them when things are bad for them, too, regardless of whether or not it is health related. Making someone with a chronic disease is not something you should see as a task. It's not something I should stop meeting someone. Because that person could be the perfect person for you. If you've stopped dating someone because they're chronically ill, you're not ready for a real relationship. A person may fall ill at any point, either "healthy" at the beginning of their relationship or not. But other things could happen too, which equally need support — you could lose your job, get pregnant, get expelled from your home. These are all things that require a person to be emotionally and physically supportive. So if you are someone who is currently off dating someone with a chronic disease, re-evaluate your idea of a relationship. Are you looking for something superficial, where there is no responsibility to support a partner when they need you? Or are you looking for someone you can fully love, develop an emotional connection with, and receive love and support in return? I know what I'd choose. Hattie Gladwell is a mental health journalist, author and defender. Write about mental illness in the hope of reducing stigma and encouraging others to speak. Related stories Read this next series of words
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